I can be a very complex person at times with lots of interests and passions.

I love a babies laugh, a kittens purr, the ocean lapping at my feet and the sun on my face.
I’m a lover of Peace and a hater of hate and discontent.
See something wrong? I want to take action and fix it. Sitting and waiting is not an option.
I love meeting people and see the good in most, but if I see no good, I will speak up and say so.

Lyme Disease and other infections.

More than 30 years of various ailments that couldn’t be explained by any of the doctors I’ve seen, has whiddled my life away. Last year I was finally diagnosed as having Lyme Disease, Ehrlichiosis, EBV and Babesiosis.

My passion for animals, hiking, camping and being in the wilderness has probably exposed me to these hideous diseases.
What’s really horrible about these vector borne diseases is that the doctors I went to never tested for any of them. It was never considered because I grew up in Calif. then lived 20 years in Ariz. and then Kansas.
Hiking and camping in the mountains of calif. Worked at a animal shelter for many years, and hiked and camped in Arizona. Then moved to Kansas to work for 9 years at a hog farm/cattle feedlot.

At any point in my life exposure to these diseases could have happened as I had started having symptoms in my late teens. Over the years the symptoms would come and go. I’ve lost count of how many specialists I’ve seen and how many family doctors I’ve been to. Not a single doctor ever asked me what my life style was or where I’ve lived.

In Az. I was bitten a few times (that I’m aware of) by ticks. The doctor said to wash the site and watch for a rash. I never had one, ever.
In Kansas, the doctors said they tested for everything, Lupus and that was about it.

I moved to NJ and the first thing the doctor tested for was Lyme. Sure wish I had gone to the East Coast sooner. Now I face years of treatments that may or may not work and much of the damage to my nervous system, joints and brain is possibly permanent.

That’s one battle to fight. Now the fight to get those treatments, the fight to get the insurance companies to cover the meds needed, the fight to get the IDSA to realize that we all arent cut from the same mold and 20 days antibiotics max. does nothing to help if you’ve been infected for years.
Even they say that Lyme Disease is treatable if caught “early” and they give no instruction to doctors as to how to treat someone who’s been infected so long.


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